tag:blogger.com,1999:blog-19611777.post7211199196208286444..comments2023-11-25T06:26:42.044-05:00Comments on Breeding Imperfection: steady, steady me lads: pulling as a teamZMhttp://www.blogger.com/profile/04469113104449353180noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-19611777.post-71745812576230369712008-02-04T11:05:00.001-05:002008-02-04T11:05:00.001-05:00Hmm. Hadn't heard of Camp Honor - although I'm fam...Hmm. Hadn't heard of Camp Honor - although I'm familiar with some of the other camps. We do have some experience with Hole in the Wall Gang Camp, and I have a lot of confidence in them.<BR/><BR/>I'm really looking forward to sending the Eldest there when the time comes. And, as it happens, the Toddles - HiTWGC has a sibling session.ZMhttps://www.blogger.com/profile/04469113104449353180noreply@blogger.comtag:blogger.com,1999:blog-19611777.post-32599004710631209162008-02-04T11:05:00.000-05:002008-02-04T11:05:00.000-05:00Hmm. Hadn't heard of Camp Honor - although I'm fam...Hmm. Hadn't heard of Camp Honor - although I'm familiar with some of the other camps. We do have some experience with Hole in the Wall Gang Camp, and I have a lot of confidence in them.<BR/><BR/>I'm really looking forward to sending the Eldest there when the time comes. And, as it happens, the Toddles - HiTWGC has a sibling session.ZMhttps://www.blogger.com/profile/04469113104449353180noreply@blogger.comtag:blogger.com,1999:blog-19611777.post-47933498618849106382008-02-03T03:02:00.000-05:002008-02-03T03:02:00.000-05:00Have you ever heard of Camp Honor (Hemophiliacs ov...Have you ever heard of Camp Honor (Hemophiliacs overcoming new obstacles resourcefully?) I was a counselor there...we taught the kids how to infuse and the like. It was fabulous!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19611777.post-89561119122758750662008-01-27T18:28:00.000-05:002008-01-27T18:28:00.000-05:00dw, I've been thinking about your comment. I think...dw, I've been thinking about your comment. I think there's a few things holding the Man back. First and foremost is insurance - he wants someone else to be responsible for our use of the expensive meds. Second is that he doesn't have a lot of faith in the training methods used by the HTC. From his perspective, we treat without good evidence that treatment is necessary (see above comment re: expensive meds and insurance). There may be other things holding him back, but I suspect that's primary.<BR/><BR/>Does he need confidence? Yep. We talk over each decision, so he has some idea as to what happens, and is involved in each decision. But he has no faith in society's willingness to continue supporting our child's medication, or in politics' ability to fix the healthcare system's spiralling costs. And that's where we get stuck.<BR/><BR/>After all, I don't have faith in politics' ability to fix this, either.ZMhttps://www.blogger.com/profile/04469113104449353180noreply@blogger.comtag:blogger.com,1999:blog-19611777.post-9188748914747958252008-01-23T21:04:00.000-05:002008-01-23T21:04:00.000-05:00good question...perhaps involving him more might h...good question...perhaps involving him more might help not only his confidence in himself, but in your knowledge too. i mean, it's not like you've been totally on the sidelines letting other people deal with things all the time. you have brains and you use them. you know your son and you know his illness and how it affects him. perhaps adding to that listing of incidents, treatments, etc. list times when you disagree with the porofessionals and see who's turned out to be right.<BR/><BR/>but also remember to consider the source. i've never had to cope with a chronic illness in a my own child (unless you count sloth).dykewifehttps://www.blogger.com/profile/17776768691386493709noreply@blogger.com