Thursday, December 10, 2009

the email not quite written

I'm procrastinating right now, having sat down 45 minutes ago to write an email to the Eldest's teachers.

Dear teachers, the email should say, I apologise if there is any possibility that I've hurt your feelings. Someone significant who might be cc'ed on this email indicated that I had - or might have - and suggested that I avoid talking to other parents about the possibility that the Eldest is occasionally bored in class. I should have talked to you, instead.

Because I'm not so subtly trying to let the Someone know that we have already discussed this, and that I'm a nice person who knows that teachers are an excellent resource, let me take this particular moment to note that I truly appreciate that you responded to the Eldest's request that you teach a certain subject in a certain way. You rock. Also, thanks for ramping up on the math - and can we ease off now? You know that I know that "bored" isn't necessarily a synonym for "too smart to need to learn this stuff," and yep, the kid didn't know how to solve all of the sixth grade math problems that got sent home with him.

Partly because he doesn't know what prime numbers are - or so saith the Man. Given this, yes please, let's have that meeting to talk about what the kid can and can't do.

And on the subject of what he can't do, thank you for being tolerant while the Eldest honed his newly discovered talents of class pain-in-the-ass. He's now quite certain that if he dislikes a subject (translation: "bored," variant 2.1), then he can be enough of a PIA to get himself tossed out of class. He told me all about the various strategies that he'd used to get himself chucked out, and was very proud. "First I flipped my chair over and sat on it, upside down. THAT's funny - it's an antic, you know. Then, I waved my hand hard when the teacher asked a question, but when she called on me, I said in this voice (oh, that voice), "I dunno." And then? I did it again." It is my hope that he now understands exactly how unacceptable this behavior is, and that while he regrows a variety of maternally-removed limbs, he appreciates your tolerance all the more.

Again, my apologies for checking around to see if other kids were a. bored and b. practicing the fine art of pain in the assness. I should have realized that asking such questions might imply that I was also considering heating up tar and gathering feathers - in truth, we're a feather-free* household for the foreseeable future. But I promise to let you know if that changes, and in the meantime hope that the above note both indicates that I honestly think that you are wonderful while demonstrates to the Someone who beheaded me telephonically this morning, that I appreciate you and yes, I did go and talk to you before consulting other, potentially feather-owning parents.

Sincerely and humbly apologetically, Me.

or something like that.

But since I haven't entirely de-snarked the above, I've been reading this thoughtful article on healthcare reform, by a local doc with a nice little pulpit. And then posting the link.

But having done so, I'm out of excuses and oughter go write that email. Sighhhh.


*thanks to the Toddles' feather allergy

Monday, December 07, 2009

scripting a day (or two)

The holiday season has begun. Happy hols to all, and to us a merry appointment.

Okay, appointments. Because, yep, this is also the season when my lads make the rounds of their various doctors. The allergy team (twice, in two cities), the hematologists, the coping clinic, the various labs and clinics that administer the tests that need to be done before the actual chat with the doctor (because the "let's test, and see what turns up and THEN talk" line is not so very useful when you have to wait a month or six to have an in-person conversation), and oh yes. The pediatrician.

Last week, we began. Skin testing for the Toddles on Monday (two boys! tiny room! no scratching allowed!), and pharmacokinetics* for the Eldest on Wednesday. And while the skin testing was mercifully brief, the 'kinetics took - always take - all freakin' day. 7.30 am we put in the pair of IVs, 3pm we staggered (okay, I staggered) out to the elevator. But if I could've scripted them, the two days could not have been better.

We walked into Monday after the Eldest took a firm stance on the question of skin testing: it is, he shrieked, unbelievably painful. He handed out protest leaflets to the Toddles, and had to be taken aside, firmly, and told that it is not okay to freak out the kid before testing. Not going to help. Just going to make him scared, and fear = pain. Got it? Begrudgingly, the Eldest got it.

And forgot it.

I prickled my nails on the boys' backs, demonstrating the test. A stomp and roar later, the Eldest had been collared and exiled to his room, there to brood on the unfairness of the mama and the cruelty of the medical world. And the Toddles, close to tears, snuggled with me and read a book about a kid afraid of needles. I'm going to do that, he told me, pointing to a page. I hugged him, and braced for the morrow.

When the Eldest blinked, looking up from his book. Are they going to do the skin testing soon? he asked. His brother gave him a fabulously incredulous look. The testing is done, he said. And it didn't hurt a bit!

In the corner, I did not smile. Nor did the corners of my mouth twitch. (heh)

And then it was the Eldest's turn.

If the Toddles shone on his day of trial, the Eldest was allowed to stand in one spot, while Children's flung glittering confetti at him. Because this was the day when the Big Apple Circus clowns visited the infusion/boring long test room, and taught the kid a magic trick.
And lo, there was delight.

Where there was a paucity of delight, there was a splattering paint machine, a child life person to keep the paint a-flowin', and nurses who really did not care if we left paint fingerprints on, oh, everything.

and lo, art was made.

The artist in residence stopped by to keep the creative juices flowing, but she was asked to wait a bit: the boys were busy eating the special batch of allergy-friendly french fries that the cafeteria's head chef had made for them. Because, y'know, one must have priorities.

Happily, she understood that. And waited until oh, there were rich watercolors on thick smears of crayon and happy paintbrushing boys.

Oh, had I been able to script this day - this pair of days - it could not have gone better. Children's shone for my boys, and they gleamed right back. We are, I know, absurdly, lushly lucky in the hospital(s) that care for our boys. The reality is the testing, and we'd adapt to that because we must. But the gift is being able to sort of revel in that reality, and to roll around in all of that joy and caring and luxurious resources, IVs, hives and all.

Because it is, after all, the holidays....


* the goal of this test is to see how the Eldest is using his clotting meds. For years, he's had an oddly fast and irregular (but reliably irregular) way of using up his meds, with half of the dose vanishing in 30 minutes, then another half in 2 hours, and so on. By testing regularly, we can adjust his preventative treatment and bleed management to suit him. It's a very good trade-off for a serious PIA day, because in a pinch, I know exactly how to calculate his ability to handle the wallop du jour.

Thursday, December 03, 2009

feelin' the lovedness

mama: rant, rant, rant, roar

(pause to be certain that child is listening)

mama: rant, roar

(some several quiet minutes later)

mama: sweetie, do you know that when I'm frustrated with you, I still love you?
Toddles: oh, yes. And when you are roaring at me, I stop listening to your words, and I only hear the lovedness.

(very short pause)

mama: oh. I'm glad to hear it?

The Toddles nods firmly, and kindly offers a hug. Setting her urge to splutter (firmly) aside, the mama takes it.